Genetics Behind Varied Symptoms in Complex Conditions

Genomic basis of phenotypic variability of complex disorders

NIH-funded research Pennsylvania State University, the · NIH-11091490

This project explores how specific genetic changes, like a deletion on chromosome 16, lead to different symptoms in children and families affected by conditions like developmental delay and autism.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionPennsylvania State University, the NIH-funded
Lab location1 site (University Park, United States)
Project IDNIH-11091490 on NIH RePORTER

What this research studies

Many complex health conditions, like developmental delays and autism, can look very different from person to person, even within the same family. This project focuses on a specific genetic change, a deletion on chromosome 16p12.1, to understand why these differences occur. Researchers believe that other genetic variations, often called 'second hits,' work together with this deletion to shape a person's unique symptoms. The goal is to discover how these specific combinations of genetic changes lead to distinct health outcomes. In earlier work, the team analyzed genetic information and health characteristics from many families with this deletion to uncover these patterns.

Who could benefit from this research

Good fit: This research is relevant for families and children affected by developmental delay, autism, or other neuropsychiatric conditions, especially those with a known 16p12.1 genetic deletion.

Not a fit: Patients whose conditions are not related to the 16p12.1 deletion or similar complex genetic interactions may not directly benefit from this specific research.

Why it matters

Potential benefit: If successful, this work could help us better predict the specific challenges a child might face based on their unique genetic makeup, leading to more personalized support and care.

How similar studies have performed: This project builds upon previous successful research that analyzed genetic and health information from numerous families with the 16p12.1 deletion.

Where this research is happening

University Park, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions 17p- syndromeAutistic Disorder
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.