Genes that change how inherited retinal disorders behave

Genetic Modifiers of Retinal Disease

NIH-funded research Jackson Laboratory · NIH-11302629

This work looks for other genes that change how CRB1-related inherited retinal diseases affect children and adults who carry CRB1 mutations.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionJackson Laboratory NIH-funded
Lab location1 site (Bar Harbor, United States)
Project IDNIH-11302629 on NIH RePORTER

What this research studies

From a patient's perspective, researchers want to know why people with the same CRB1 mutation can have very different eye problems, from early severe blindness to slower retinitis pigmentosa. They compare genetic data and clinical features from people with CRB1 mutations and study how other background genes and different CRB1 isoforms alter disease in lab models and animals. The team uses human sequencing, patient phenotype data, and laboratory experiments to link specific modifier genes to particular retinal changes. Understanding these modifiers could help explain individual differences in disease and point to new treatment targets or ways to predict disease course.

Who could benefit from this research

Good fit: Ideal candidates are children or adults with a confirmed CRB1 mutation or patients willing to provide genetic information and clinical eye data.

Not a fit: People whose vision loss is not caused by CRB1 mutations or who do not provide genetic/clinical information are unlikely to benefit directly from this project.

Why it matters

Potential benefit: If successful, this could identify genes or pathways that lead to new treatments or better predictions of disease course for people with CRB1-related retinal disorders.

How similar studies have performed: Some prior work has found modifier genes for other inherited retinal diseases, but finding modifiers specific to CRB1 is relatively new and still challenging.

Where this research is happening

Bar Harbor, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.