Gene editing to treat spinal muscular atrophy

Project 1: Therapeutic Gene Editing for Spinal Muscular Atrophy (Trailblazer)

NIH-funded research Jackson Laboratory · NIH-11089352

This study is working on a new gene editing treatment for spinal muscular atrophy (SMA) to see how well it can help improve muscle strength and overall health, especially for infants affected by this condition.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionJackson Laboratory NIH-funded
Lab location1 site (Bar Harbor, United States)
Project IDNIH-11089352 on NIH RePORTER

What this research studies

This research focuses on developing a gene editing therapy for spinal muscular atrophy (SMA), a severe genetic disorder that leads to muscle weakness and is a leading cause of infant mortality. The project aims to optimize treatment protocols using advanced gene editing techniques in mouse models of SMA, assess the safety and effectiveness of these treatments, and conduct large-scale studies to evaluate their potential. By closely analyzing the outcomes of these gene editing approaches, the research seeks to pave the way for future clinical applications that could significantly improve patient outcomes.

Who could benefit from this research

Good fit: Ideal candidates for this research are infants diagnosed with spinal muscular atrophy, particularly those with the most common type, SMA type I.

Not a fit: Patients with other forms of motor neuron diseases or those without a diagnosis of spinal muscular atrophy may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to a groundbreaking treatment that significantly improves the survival and quality of life for infants with spinal muscular atrophy.

How similar studies have performed: Previous research using gene editing techniques has shown promise in treating genetic disorders, indicating that this approach could be effective for spinal muscular atrophy as well.

Where this research is happening

Bar Harbor, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Aran-Duchenne disease
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.