Gene activity linked to pain in sickle cell disease

Transcriptomics of Pain in Sickle Cell Disease

NIH-funded research Emory University · NIH-11166558

Researchers are looking at gene activity in blood cells to find markers tied to pain crises and long-term pain in people with sickle cell disease.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionEmory University NIH-funded
Lab location1 site (Atlanta, United States)
Project IDNIH-11166558 on NIH RePORTER

What this research studies

If I take part, researchers will use blood samples taken at different times (steady state, during a painful vaso-occlusive crisis, and after it resolves) to study RNA from red cell precursors and white blood cells. They will compare gene activity patterns between people with and without chronic pain and link those patterns to each person’s whole genome data. The team will use large-scale sequencing data stored in TOPMed to build a transcriptional risk score and run analyses to find genetic changes that may drive pain. The work aims to turn those RNA and genetic signals into objective markers that could help predict or explain who develops chronic pain.

Who could benefit from this research

Good fit: People with sickle cell disease—particularly adults (21+) who have experienced vaso-occlusive crises or ongoing chronic pain—are the most relevant candidates for this work.

Not a fit: People without sickle cell disease or those outside the study’s eligible age range are unlikely to gain direct benefit from this project.

Why it matters

Potential benefit: If successful, this could yield blood-based markers or risk scores to help predict pain crises and guide personalized care for people with sickle cell disease.

How similar studies have performed: Transcriptome and TWAS approaches have identified risk genes in other conditions, but applying them specifically to sickle cell pain is relatively new and partly untested.

Where this research is happening

Atlanta, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.