Finding the best vision care for patients with inherited retinal diseases who are emotionally distressed
Official title: Determining optimal vision care for emotionally distressed patients with inherited retinal diseases
Funded at University of Michigan at Ann Arbor · NIH-11038028 · Data updated 2026-11-12
This study is looking to help people with inherited retinal diseases who are also feeling anxious or depressed by combining vision rehabilitation with a special therapy to help manage emotions, so they can feel better both emotionally and in their daily lives.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Michigan at Ann Arbor NIH-funded |
| Lab location | 1 site (Ann Arbor, United States) |
| Project start | March 1, 2024 |
| Project end | February 28, 2029 |
| Funding year | 2025 |
| Award (this year) | $700,286 |
| NIH project number | 5R01EY035016-02 |
| Project ID | NIH-11038028 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are individuals diagnosed with inherited retinal diseases who are experiencing emotional distress.
✕Less likely to help
Patients without inherited retinal diseases or those not experiencing emotional distress may not benefit from this research.
What this research studies
This research aims to improve care for patients with inherited retinal diseases (IRDs) who also experience emotional distress, such as anxiety and depression. It will evaluate the effectiveness of low vision rehabilitation (LVR) combined with a specific type of therapy called Emotion Regulation Therapy (ERT). By using validated measures to assess patients' unique challenges, the study seeks to provide personalized treatment approaches that address both vision and emotional health. Patients will be monitored for improvements in their vision-related functioning and emotional well-being.
Why it matters
Potential benefit: If successful, this research could lead to more effective treatment strategies that enhance both vision and emotional health for patients with inherited retinal diseases.
How similar studies have gone: Previous research has shown promise in combining vision rehabilitation with psychological therapies, indicating potential for success in this novel approach.
Where this research is happening
-
University of Michigan at Ann Arbor
Ann Arbor, United States Active
Researchers
- Principal investigator: Jayasundera, Kanishka Thiran — University of Michigan at Ann Arbor
- Study coordinator: Jayasundera, Kanishka Thiran
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.