Finding the best vision care for patients with inherited retinal diseases who are emotionally distressed
Determining optimal vision care for emotionally distressed patients with inherited retinal diseases
['FUNDING_R01'] · UNIVERSITY OF MICHIGAN AT ANN ARBOR · NIH-11038028
This study is looking to help people with inherited retinal diseases who are also feeling anxious or depressed by combining vision rehabilitation with a special therapy to help manage emotions, so they can feel better both emotionally and in their daily lives.
Quick facts
| Phase | ['FUNDING_R01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF MICHIGAN AT ANN ARBOR (nih funded) |
| Locations | 1 site (ANN ARBOR, UNITED STATES) |
| Trial ID | NIH-11038028 on ClinicalTrials.gov |
What this research studies
This research aims to improve care for patients with inherited retinal diseases (IRDs) who also experience emotional distress, such as anxiety and depression. It will evaluate the effectiveness of low vision rehabilitation (LVR) combined with a specific type of therapy called Emotion Regulation Therapy (ERT). By using validated measures to assess patients' unique challenges, the study seeks to provide personalized treatment approaches that address both vision and emotional health. Patients will be monitored for improvements in their vision-related functioning and emotional well-being.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with inherited retinal diseases who are experiencing emotional distress.
Not a fit: Patients without inherited retinal diseases or those not experiencing emotional distress may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to more effective treatment strategies that enhance both vision and emotional health for patients with inherited retinal diseases.
How similar studies have performed: Previous research has shown promise in combining vision rehabilitation with psychological therapies, indicating potential for success in this novel approach.
Where this research is happening
ANN ARBOR, UNITED STATES
- UNIVERSITY OF MICHIGAN AT ANN ARBOR — ANN ARBOR, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: JAYASUNDERA, KANISHKA THIRAN — UNIVERSITY OF MICHIGAN AT ANN ARBOR
- Study coordinator: JAYASUNDERA, KANISHKA THIRAN
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.