Finding new treatments for rare genetic disorders affecting glycosylation.

Identifying New Therapeutics and Molecular Mechanisms in Congenital Disorders of Glycosylation.

['FUNDING_OTHER'] · UNIVERSITY OF KANSAS LAWRENCE · NIH-11169410

This study is looking into rare genetic conditions called Congenital Disorders of Glycosylation (CDGs) to understand how they work and find new treatments, using human cells and tests on a small animal to see if any current medications can help improve health for people with these disorders.

Quick facts

Phase['FUNDING_OTHER']
Study typeNih_funding
SexAll
SponsorUNIVERSITY OF KANSAS LAWRENCE (nih funded)
Locations1 site (LAWRENCE, UNITED STATES)
Trial IDNIH-11169410 on ClinicalTrials.gov

What this research studies

This research focuses on Congenital Disorders of Glycosylation (CDGs), which are rare genetic conditions caused by errors in the glycosylation process, affecting how proteins are modified in the body. The study aims to uncover the mechanisms behind these disorders and identify potential new therapies. Researchers will use human cell cultures to explore how certain genes can be modified to improve health outcomes for patients with CDGs. Additionally, they will conduct drug screenings using a model organism to find existing medications that could be repurposed for treating these conditions.

Who could benefit from this research

Good fit: Ideal candidates for this research are individuals diagnosed with Congenital Disorders of Glycosylation, particularly those with DPAGT1-CDG.

Not a fit: Patients with other genetic disorders unrelated to glycosylation may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to new treatment options for patients suffering from Congenital Disorders of Glycosylation.

How similar studies have performed: While research on glycosylation disorders is ongoing, the specific approach of repurposing existing drugs for CDGs is relatively novel and has not been extensively tested.

Where this research is happening

LAWRENCE, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.

View on NIH RePORTER →

Conditions: Candidate Disease Gene

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.