Finding new treatments and how they work for congenital glycosylation disorders

Identifying New Therapeutics and Molecular Mechanisms in Congenital Disorders of Glycosylation.

NIH-funded research University of Kansas Lawrence · NIH-11176358

This project looks for existing medicines and gene changes that could help people with congenital disorders of glycosylation, focusing on DPAGT1-CDG.

Quick facts

Grant typeNIH-funded research
Study typeNIH-funded research
Funding institutionUniversity of Kansas Lawrence NIH-funded
Lab location1 site (Lawrence, United States)
Project IDNIH-11176358 on NIH RePORTER

What this research studies

Researchers will study human cell models that carry DPAGT1-related defects to see how certain modifier genes improve cell growth, reduce stress, and change the patterns of protein sugars. They will then test over 1,500 mostly FDA- or EMA-approved drugs in a fruit fly (Drosophila) model of DPAGT1-CDG to find compounds that rescue disease features in a living animal. Promising genes and drugs from these lab and fly tests would be prioritized as potential treatment leads for further preclinical work. The approach uses both patient-relevant human cells and an in vivo screen to speed up discovery of repurposed drugs and biological targets.

Who could benefit from this research

Good fit: People with a confirmed diagnosis of DPAGT1-related CDG or other congenital disorders of glycosylation, and families willing to provide samples or consider future trials, would be the most relevant candidates.

Not a fit: People without a CDG diagnosis or whose genetic cause lies outside DPAGT1-related pathways are unlikely to gain direct benefit from this specific project.

Why it matters

Potential benefit: If successful, this work could reveal drug candidates and biological targets that lead to new treatments for people with CDGs like DPAGT1-CDG.

How similar studies have performed: Using human cell models and repurposed drug screens in animal models has produced promising leads in other rare genetic disorders, but applying these methods to DPAGT1-CDG is relatively new.

Where this research is happening

Lawrence, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Candidate Disease Gene
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.