Finding better ways to identify young women with von Willebrand Disease
Developing Primary Care Algorithms for Early Identification of Young Women with von Willebrand Disease
This study is looking for the best ways to help doctors spot von Willebrand Disease in young women who have heavy periods, so they can get the right care sooner.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Research Inst Nationwide Children's Hosp NIH-funded |
| Lab location | 1 site (Columbus, United States) |
| Project ID | NIH-10908277 on NIH RePORTER |
What this research studies
This research focuses on improving the early identification of young women who may have von Willebrand Disease (VWD), a bleeding disorder that is often overlooked. The team will compare different screening methods, including a bleeding assessment tool and a point-of-care ferritin test, to see which is most effective in detecting VWD in adolescents experiencing heavy menstrual bleeding. By validating these screening strategies in primary care settings, the research aims to enhance diagnosis and treatment options for affected individuals.
Who could benefit from this research
Good fit: Ideal candidates for this research are young women, particularly adolescents, who experience heavy menstrual bleeding and may be at risk for von Willebrand Disease.
Not a fit: Patients who do not experience heavy menstrual bleeding or who are outside the age range of adolescents may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to earlier diagnosis and better management of von Willebrand Disease in young women, reducing complications related to heavy menstrual bleeding.
How similar studies have performed: Previous research has shown success in using bleeding assessment tools for diagnosing bleeding disorders, but this specific approach to screening in primary care settings is relatively novel.
Where this research is happening
Columbus, United States
- Research Inst Nationwide Children's Hosp — Columbus, United States (Active)
Researchers
- Principal investigator: Obrien, Sarah H — Research Inst Nationwide Children's Hosp
- Study coordinator: Obrien, Sarah H
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.