Finding and supporting people with rare or unusual diabetes
Center for Identification and Study of Individuals with Atypical Diabetes Mellitus
This project finds people with rare or atypical types of diabetes, gathers health and genetic information, and stores samples so researchers can better understand causes and treatments.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Chicago NIH-funded |
| Lab location | 1 site (Chicago, United States) |
| Project ID | NIH-11370899 on NIH RePORTER |
What this research studies
This program identifies patients and families who have rare or atypical forms of diabetes and invites them to share medical histories, exams, and biologic samples. Participants receive genetic testing and detailed clinical measurements to characterize their diabetes. Collected data and biospecimens are stored in an access‑controlled biorepository and database that qualified researchers can use. The program emphasizes community outreach and uses community health workers and a local coordinator in Chicago to improve recruitment and retention.
Who could benefit from this research
Good fit: Adults with adult‑onset, brittle, or otherwise atypical diabetes and their family members, especially those with unexplained or unusual features, are the ideal candidates.
Not a fit: People with common, typical type 1 or type 2 diabetes without atypical features are unlikely to receive direct benefit from this network.
Why it matters
Potential benefit: If successful, it could help doctors diagnose unusual diabetes types earlier and guide more personalized treatments based on genetic and clinical findings.
How similar studies have performed: Other patient networks and biobanks have successfully identified genetic causes of rare diabetes, so this effort builds on proven approaches.
Where this research is happening
Chicago, United States
- University of Chicago — Chicago, United States (Active)
Researchers
- Principal investigator: Philipson, Louis H. — University of Chicago
- Study coordinator: Philipson, Louis H.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.