Financial burdens of caregiving for Alzheimer's and related dementias
Financial Impact of Support and Care in Alzheimer's disease and Related Dementias (FISCAL)
The team will work with family caregivers and their social networks to create and refine a clear questionnaire that captures how caring for someone with Alzheimer's affects caregivers' finances.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Utah State Higher Education System--University of Utah NIH-funded |
| Lab location | 1 site (Salt Lake City, United States) |
| Project ID | NIH-11189810 on NIH RePORTER |
What this research studies
You would be invited to describe the real costs and money-related changes that come with caring for a person with Alzheimer’s or a related dementia. Researchers will talk with diverse family caregivers and people in their social networks to find out what money problems matter most. They will use that input to build a short questionnaire, try the questionnaire in a pilot group, and then revise and validate it in a larger group. The goal is a reliable tool that reflects caregivers' financial experiences across different communities.
Who could benefit from this research
Good fit: Ideal participants are family or informal caregivers of people living with Alzheimer’s disease or related dementias, including members of caregivers' social networks and caregivers from diverse racial, ethnic, and rural backgrounds.
Not a fit: People who are not family/informal caregivers or those whose care needs are handled entirely by paid institutional providers are unlikely to benefit directly from participating.
Why it matters
Potential benefit: If successful, this work could give caregivers, clinicians, and policymakers a clear way to see and address the financial harms of dementia caregiving.
How similar studies have performed: Some prior work has measured caregiver burden and costs, but a comprehensive, validated measure that includes the caregiver's broader social network is relatively novel.
Where this research is happening
Salt Lake City, United States
- Utah State Higher Education System--University of Utah — Salt Lake City, United States (Active)
Researchers
- Principal investigator: Bouldin, Erin — Utah State Higher Education System--University of Utah
- Study coordinator: Bouldin, Erin
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.