Family caregiving, support, and quality of life for Asian people living with Alzheimer's
Characterizing Family Structure, Care Utilization, and Well-Being among Persons with ADRD in the Asian Region
This project looks at who provides care, what services families use, and how caregiving affects well-being for people with Alzheimer's in Asian and Asian American communities.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Duke University NIH-funded |
| Lab location | 1 site (Durham, United States) |
| Project ID | NIH-11333025 on NIH RePORTER |
What this research studies
You and your family might be asked about who helps with care, what services you use, and how caregiving affects daily life through interviews and questionnaires. The team will collect information from families in the Asian region and Asian American communities to capture different household arrangements like multigenerational homes and the use of paid helpers. Researchers will compare care patterns, service use, and well-being across cultural and socioeconomic groups to identify common needs and gaps. Findings will be used to suggest care approaches that fit cultural expectations and real-world family situations.
Who could benefit from this research
Good fit: Ideal participants are people living with Alzheimer's or related dementias and their family caregivers from Asian countries or Asian American communities, including multigenerational households and families using domestic helpers.
Not a fit: People who are not of Asian descent, those already in long-term institutional care, or those without family or caregiver involvement may not directly benefit from this research.
Why it matters
Potential benefit: If successful, this work could lead to culturally adapted dementia support programs that better help Asian and Asian American families reduce caregiver strain and improve quality of life.
How similar studies have performed: Some caregiver programs have helped families in prior studies, but applying and tailoring those models specifically to Asian cultural contexts is relatively untested and partly novel.
Where this research is happening
Durham, United States
- Duke University — Durham, United States (Active)
Researchers
- Principal investigator: Xu, Hanzhang — Duke University
- Study coordinator: Xu, Hanzhang
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.