Exploring ways to share breast cancer genetic results with African American women
Testing scalable communication modalities for returning breast cancer genetic research results to African American women
This study is looking at the best ways to share important genetic information about breast cancer with African American women, so they can better understand their health and make informed choices.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Boston University Medical Campus NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project ID | NIH-10614522 on NIH RePORTER |
What this research studies
This research investigates effective methods for communicating genetic research results related to breast cancer to African American women. By conducting a randomized controlled trial within the Black Women's Health Study, the project aims to test different communication strategies for disclosing genetic information. The study involves targeted sequencing of genes associated with breast cancer in a large cohort of women, focusing on how best to return these results to participants. The goal is to enhance understanding and accessibility of genetic information, ultimately empowering women in their health decisions.
Who could benefit from this research
Good fit: Ideal candidates for this research are African American women who are participants in the Black Women's Health Study and have undergone genetic testing for breast cancer-related genes.
Not a fit: Patients who are not part of the Black Women's Health Study or those who do not have a genetic predisposition to breast cancer may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could improve how genetic information is shared with patients, leading to better informed health decisions and potentially improved outcomes for breast cancer.
How similar studies have performed: Previous research has shown promise in using alternative communication methods for genetic information disclosure, but this specific approach is innovative and aims to address gaps in current practices.
Where this research is happening
Boston, United States
- Boston University Medical Campus — Boston, United States (Active)
Researchers
- Principal investigator: Wang, Catharine — Boston University Medical Campus
- Study coordinator: Wang, Catharine
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.