Exploring the implications of genomic testing offered by employers
Ethical, Legal, Social, and Policy Implications of Workplace Genomic Testing
This study is looking into how workplace genetic testing affects employees and employers, focusing on people's feelings about privacy and the reasons companies might want to use this testing in their health plans.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Jackson Laboratory NIH-funded |
| Lab location | 1 site (Bar Harbor, United States) |
| Project ID | NIH-10684009 on NIH RePORTER |
What this research studies
This research investigates the ethical, legal, social, and policy implications of workplace genomic testing (wGT) as it becomes more common in employer health plans. It employs a mixed-methods approach, including landscape analysis and interviews with employers, as well as surveys of employees to understand their attitudes towards wGT. The study aims to gather insights from various stakeholders to assess the benefits and risks associated with wGT, focusing on privacy concerns and the motivations behind its implementation.
Who could benefit from this research
Good fit: Ideal candidates for this research include employed adults who are either considering or have undergone workplace genomic testing.
Not a fit: Patients who are not employed or do not have access to workplace genomic testing may not receive any benefit from this research.
Why it matters
Potential benefit: If successful, this research could help shape policies that protect employee privacy while maximizing the benefits of genomic testing in the workplace.
How similar studies have performed: While the implications of genomic testing have been explored in various contexts, this specific focus on workplace settings and the associated ethical and legal concerns is relatively novel.
Where this research is happening
Bar Harbor, United States
- Jackson Laboratory — Bar Harbor, United States (Active)
Researchers
- Principal investigator: Lee, Charles — Jackson Laboratory
- Study coordinator: Lee, Charles
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.