Exploring the impact of social connections on parents with Huntington's disease and their children.
Official title: Social Connectedness and Communication in Parents with Huntington''s Disease and their Offspring: Associations with Psychological and Disease Progression
Funded at Vanderbilt University · NIH-11045763 · Data updated 2026-11-12
This study looks at how staying connected and communicating with each other can impact parents with Huntington's disease and their kids, helping us understand how these relationships affect everyone's health and happiness.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Vanderbilt University NIH-funded |
| Lab location | 1 site (Nashville, UNITED STATES) |
| Project start | March 5, 2022 |
| Project end | February 28, 2027 |
| Funding year | 2025 |
| Award (this year) | $678,467 |
| NIH project number | 5R01HD104188-04 |
| Project ID | NIH-11045763 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for participation include parents diagnosed with Huntington's disease and their children, particularly those in the age range of 0-21 years.
✕Less likely to help
Patients who do not have a parent with Huntington's disease or those who are not directly affected by the condition may not benefit from this research.
What this research studies
This research investigates how social connectedness and communication affect parents with Huntington's disease and their offspring. It focuses on understanding the psychological impacts and disease progression associated with these relationships. By examining the dynamics within families where a parent has Huntington's disease, the study aims to identify how these social factors influence both the parent's health and the child's well-being. The methodology includes qualitative assessments and surveys to gather insights from affected families.
Why it matters
Potential benefit: If successful, this research could lead to improved support strategies for families dealing with Huntington's disease, enhancing their quality of life.
How similar studies have gone: Previous research has shown that social relationships significantly impact health outcomes, suggesting that this approach could yield valuable insights into neurodegenerative diseases.
Where this research is happening
-
Vanderbilt University
Nashville, United States Active
Researchers
- Principal investigator: Compas, Bruce E — Vanderbilt University
- Study coordinator: Compas, Bruce E
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.