Exploring the ethics of genomic research in Indigenous communities
Official title: Center on the Ethics of Indigenous Genomic Research
Funded at University of Oklahoma · NIH-11089166 · Data updated 2026-11-12
This study is all about working closely with American Indian and Alaska Native communities to understand their needs and priorities in genomic research, making sure their voices are heard and respected while helping them lead their own research efforts.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Oklahoma NIH-funded |
| Lab location | 1 site (Norman, United States) |
| Project start | September 24, 2024 |
| Project end | June 30, 2025 |
| Funding year | 2024 |
| Award (this year) | $561,142 |
| NIH project number | 3RM1HG009042-08S1 |
| Project ID | NIH-11089166 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for participation or benefit from this research include American Indian and Alaska Native individuals and communities interested in genomic research and its implications.
✕Less likely to help
Patients who do not identify as American Indian or Alaska Native may not receive direct benefits from this research.
What this research studies
This research focuses on addressing the ethical, legal, and social implications of genomic research specifically for American Indian and Alaska Native (AI/AN) communities. It aims to authentically engage these communities in discussions about their research priorities and to build infrastructure for community-led research. By collaborating with Tribal research enterprises and community-based investigators, the project seeks to enhance participation and address barriers in genomic research. The approach includes community engagement, Indigenous research methods, and deliberative processes tailored to AI/AN contexts.
Why it matters
Potential benefit: If successful, this research could empower Indigenous communities to have a greater voice in genomic research, leading to more culturally sensitive and relevant outcomes.
How similar studies have gone: Previous research has shown success in community-engaged scholarship within Indigenous contexts, indicating a promising approach for this project.
Where this research is happening
-
University of Oklahoma
Norman, United States Active
Researchers
- Principal investigator: Spicer, Paul G — University of Oklahoma
- Study coordinator: Spicer, Paul G
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.