Exploring the ethical, legal, and social implications of genetic research.
ELSI Biennial Congress
This study is all about bringing together experts to talk about the important social and ethical issues related to genetic research, so everyone can better understand how it affects people and communities.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Columbia University Health Sciences NIH-funded |
| Lab location | 1 site (New York, United States) |
| Project ID | NIH-10840687 on NIH RePORTER |
What this research studies
This research focuses on the ethical, legal, and social implications (ELSI) of genetic and genomic research, aiming to foster dialogue among researchers in this multidisciplinary field. The project will organize biennial congresses to provide a platform for ELSI researchers to present their findings, share insights, and engage with a diverse audience. By bringing together experts from various fields, including humanities, social sciences, and medicine, the congresses will enhance collaboration and understanding of the implications of genetic research on individuals and communities.
Who could benefit from this research
Good fit: Ideal candidates for participation or benefit from this research include individuals and families affected by genetic conditions, as well as researchers and professionals in the field of genetics and bioethics.
Not a fit: Patients who are not involved in genetic research or do not have a vested interest in the ethical implications of such research may not receive direct benefits from this initiative.
Why it matters
Potential benefit: If successful, this research could lead to improved ethical guidelines and policies that better protect individuals and communities involved in genetic research.
How similar studies have performed: Previous congresses and conferences focused on ELSI research have shown success in fostering collaboration and advancing the field, indicating that this approach is both valuable and necessary.
Where this research is happening
New York, United States
- Columbia University Health Sciences — New York, United States (Active)
Researchers
- Principal investigator: Lee, Sandra Soo-Jin — Columbia University Health Sciences
- Study coordinator: Lee, Sandra Soo-Jin
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.