Exploring the ethical and social implications of human virome research
Ethical, Legal, Social Implication Core
This study is looking at the viruses in our bodies to understand how they affect different people, especially those from diverse backgrounds, while making sure to respect everyone's privacy and rights.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Pennsylvania NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project ID | NIH-10990016 on NIH RePORTER |
What this research studies
This research investigates the ethical, legal, and social implications of studying the human virome, which involves analyzing the viruses present in human bodies. It aims to understand the potential risks and benefits associated with deep genomic characterization, particularly for diverse populations. The project will address concerns about participant confidentiality, consent, and the impact of findings on communities, especially those that may be marginalized. By engaging with participants and communities, the research seeks to ensure that ethical considerations are prioritized throughout the study.
Who could benefit from this research
Good fit: Ideal candidates for this research include individuals from diverse backgrounds who are 21 years or older and are willing to engage in discussions about the implications of genomic research.
Not a fit: Patients who are not interested in participating in genomic research or who do not meet the age requirement may not receive benefits from this research.
Why it matters
Potential benefit: If successful, this research could lead to safer and more ethically sound practices in genomic studies, ultimately benefiting participants and their communities.
How similar studies have performed: Previous research on the ethical implications of the Human Genome Project and the Human Microbiome Project has shown success in addressing similar ethical concerns, making this approach informed by past experiences.
Where this research is happening
Philadelphia, United States
- University of Pennsylvania — Philadelphia, United States (Active)
Researchers
- Principal investigator: Joffe, Steven — University of Pennsylvania
- Study coordinator: Joffe, Steven
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.