Exploring the challenges African American communities face in accessing genomic medicine
Navigating Online Patient Experiences of Genomic Medicine: Identifying and Overcoming Obstacles for African American Communities
This study is looking at the challenges that African American communities face when trying to access genomic medicine, which can help improve their healthcare, and it aims to find ways to make this important medical information more available and understandable for everyone.
Quick facts
| Grant type | R21 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Boston Children's Hospital NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project ID | NIH-10469319 on NIH RePORTER |
What this research studies
This research investigates the barriers that African American communities encounter when trying to access genomic medicine, which can enhance diagnosis and treatment options. By analyzing experiences shared on online health networks, the study aims to identify systemic obstacles and develop targeted interventions to improve access and understanding of genomic medicine. The approach includes gathering data from diverse patient experiences to ensure a comprehensive understanding of the issues faced. Ultimately, the goal is to facilitate better integration of genomic medicine into healthcare for underserved populations.
Who could benefit from this research
Good fit: Ideal candidates for this research are African American individuals who are interested in or have experienced challenges with genomic medicine.
Not a fit: Patients who do not identify as African American or those who have not encountered barriers in accessing genomic medicine may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved access to genomic medicine for African American patients, enhancing their healthcare outcomes.
How similar studies have performed: Other research has shown success in utilizing social media to gather patient experiences and identify barriers in healthcare access, making this approach promising.
Where this research is happening
Boston, United States
- Boston Children's Hospital — Boston, United States (Active)
Researchers
- Principal investigator: Brownstein, Catherine Astrid — Boston Children's Hospital
- Study coordinator: Brownstein, Catherine Astrid
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.