Exploring how parents and adolescents make decisions about joining clinical trials
Examination of parent-adolescent shared decision-making about participation in pediatric clinical trials
['FUNDING_R21'] · INNOVATION RESEARCH AND TRAINING, INC. · NIH-10986607
This study looks at how parents and their teenage kids talk about joining clinical trials for medical research, aiming to understand how their conversations change as kids get older, so we can make it easier for families to participate in these important studies.
Quick facts
| Phase | ['FUNDING_R21'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | INNOVATION RESEARCH AND TRAINING, INC. (nih funded) |
| Locations | 1 site (DURHAM, UNITED STATES) |
| Trial ID | NIH-10986607 on ClinicalTrials.gov |
What this research studies
This research investigates the shared decision-making process between parents and adolescents when considering participation in pediatric clinical trials. It aims to understand how communication behaviors influence these decisions, particularly as children grow older and their roles in the decision-making process evolve. The study will involve observing parent-adolescent pairs as they discuss hypothetical clinical trial participation, followed by questionnaires to capture their experiences and feelings about the decision-making process. By examining these interactions, the research seeks to improve recruitment and retention strategies in pediatric clinical trials.
Who could benefit from this research
Good fit: Ideal candidates for this research include parent-adolescent pairs where the adolescent is between the ages of 0 and 20 years old.
Not a fit: Patients who are not involved in the decision-making process regarding clinical trial participation, such as those who are not accompanied by a parent or guardian, may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could enhance the way families engage in clinical trial decisions, leading to better participation rates and more effective treatments for children and adolescents.
How similar studies have performed: Previous research has indicated that shared decision-making approaches can improve engagement in clinical trials, suggesting that this study's focus on communication may yield valuable insights.
Where this research is happening
DURHAM, UNITED STATES
- INNOVATION RESEARCH AND TRAINING, INC. — DURHAM, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: PARKER, ALISON ELAINE — INNOVATION RESEARCH AND TRAINING, INC.
- Study coordinator: PARKER, ALISON ELAINE
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.