Exploring how parents and adolescents make decisions about joining clinical trials
Official title: Examination of parent-adolescent shared decision-making about participation in pediatric clinical trials
Funded at Innovation Research and Training, INC. · NIH-10986607 · Data updated 2026-11-12
This study looks at how parents and their teenage kids talk about joining clinical trials for medical research, aiming to understand how their conversations change as kids get older, so we can make it easier for families to participate in these important studies.
Quick facts
| Grant type | R21 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Innovation Research and Training, INC. NIH-funded |
| Lab location | 1 site (Durham, United States) |
| Project start | September 10, 2024 |
| Project end | August 31, 2026 |
| Funding year | 2024 |
| Award (this year) | $484,000 |
| NIH project number | 1R21HD113894-01A1 |
| Project ID | NIH-10986607 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include parent-adolescent pairs where the adolescent is between the ages of 0 and 20 years old.
✕Less likely to help
Patients who are not involved in the decision-making process regarding clinical trial participation, such as those who are not accompanied by a parent or guardian, may not benefit from this research.
What this research studies
This research investigates the shared decision-making process between parents and adolescents when considering participation in pediatric clinical trials. It aims to understand how communication behaviors influence these decisions, particularly as children grow older and their roles in the decision-making process evolve. The study will involve observing parent-adolescent pairs as they discuss hypothetical clinical trial participation, followed by questionnaires to capture their experiences and feelings about the decision-making process. By examining these interactions, the research seeks to improve recruitment and retention strategies in pediatric clinical trials.
Why it matters
Potential benefit: If successful, this research could enhance the way families engage in clinical trial decisions, leading to better participation rates and more effective treatments for children and adolescents.
How similar studies have gone: Previous research has indicated that shared decision-making approaches can improve engagement in clinical trials, suggesting that this study's focus on communication may yield valuable insights.
Where this research is happening
-
Innovation Research and Training, INC.
Durham, United States Active
Researchers
- Principal investigator: Parker, Alison Elaine — Innovation Research and Training, INC.
- Study coordinator: Parker, Alison Elaine
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.