Exploring how non-coding regions of the genome affect diseases like sickle cell anemia.

Multiscale exploration of the functional non-coding genome

['FUNDING_OTHER'] · MASSACHUSETTS GENERAL HOSPITAL · NIH-10656290

This study is looking at parts of our DNA that don’t code for proteins but help control how our genes work, to better understand how they affect diseases like sickle cell disease and beta-thalassemia, with the hope of finding new treatments that are personalized for patients.

Quick facts

Phase['FUNDING_OTHER']
Study typeNih_funding
SexAll
SponsorMASSACHUSETTS GENERAL HOSPITAL (nih funded)
Locations1 site (BOSTON, UNITED STATES)
Trial IDNIH-10656290 on ClinicalTrials.gov

What this research studies

This research investigates the role of non-coding sequences in the genome, which are crucial for regulating gene expression and influencing disease severity. By using advanced techniques like CRISPR to perturb these non-coding elements, the study aims to uncover their functions and how genetic variations impact them. The goal is to enhance our understanding of these sequences at a detailed level, which could lead to new therapeutic strategies for conditions such as sickle cell disease and beta-thalassemia. Patients may benefit from insights that could inform future treatments tailored to their genetic profiles.

Who could benefit from this research

Good fit: Ideal candidates for this research include individuals diagnosed with sickle cell disease or beta-thalassemia.

Not a fit: Patients with conditions unrelated to genetic variations in non-coding regions may not benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to novel therapies that improve treatment outcomes for patients with sickle cell disease and related conditions.

How similar studies have performed: Previous research has shown promise in understanding non-coding regions, but this approach using CRISPR is relatively novel and untested in this specific context.

Where this research is happening

BOSTON, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.

View on NIH RePORTER →

Conditions: Hb SS disease, HbSS disease, Hemoglobin S Disease, Hemoglobin sickle cell disease, Hemoglobin sickle cell disorder

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.