Exploring how genomics companies can improve ethical practices and access to genetic services
Organizational and Cultural Dynamics in Genomics Companies: Industry Engagement in Navigating Social and Ethical Issues
['FUNDING_OTHER'] · COLUMBIA UNIVERSITY HEALTH SCIENCES · NIH-10542816
This study is looking at how genomics companies can be fairer and more responsible, by talking to people in the industry from the US and South Africa to find better ways to make genetic services accessible to everyone.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | COLUMBIA UNIVERSITY HEALTH SCIENCES (nih funded) |
| Locations | 1 site (NEW YORK, UNITED STATES) |
| Trial ID | NIH-10542816 on ClinicalTrials.gov |
What this research studies
This research investigates the organizational and cultural dynamics within genomics companies to promote more equitable practices. It involves a five-year project that gathers insights from industry members to analyze ethical issues related to pricing, access, and social responsibility. By comparing perspectives from biotech hubs in the US and South Africa, the research aims to identify actionable strategies for improving ethics in the genomics sector. The findings will help inform policies and practices that enhance patient access to genetic services.
Who could benefit from this research
Good fit: Ideal candidates for benefiting from this research include individuals seeking genetic testing or services, particularly those from underserved communities.
Not a fit: Patients who are not interested in genetic testing or who do not face barriers to access may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to more equitable access to genetic testing and services for patients.
How similar studies have performed: Other research has shown success in addressing ethical issues in healthcare, suggesting that this approach could yield meaningful insights and improvements.
Where this research is happening
NEW YORK, UNITED STATES
- COLUMBIA UNIVERSITY HEALTH SCIENCES — NEW YORK, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: WALKER, ALEXIS — COLUMBIA UNIVERSITY HEALTH SCIENCES
- Study coordinator: WALKER, ALEXIS
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.