Exploring how dementia affects personal values and caregiving relationships
Official title: Personal Values in Dementia Experience, Caregiving, and Research
Funded at University of California, San Francisco · NIH-10884952 · Data updated 2026-11-12
This study looks at how dementia affects the personal values of people with early Alzheimer's and frontotemporal dementia, and how those changes impact their caregivers, helping everyone understand the emotional and ethical challenges they face together.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of California, San Francisco NIH-funded |
| Lab location | 1 site (San Francisco, United States) |
| Project start | September 15, 2024 |
| Project end | August 31, 2027 |
| Funding year | 2024 |
| Award (this year) | $2,374,537 |
| NIH project number | 1RF1AG083830-01A1 |
| Project ID | NIH-10884952 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include individuals diagnosed with early Alzheimer's disease or frontotemporal dementia.
✕Less likely to help
Patients with advanced stages of dementia or those not experiencing significant changes in their values may not benefit from this research.
What this research studies
This research investigates how dementia influences the personal values of individuals diagnosed with the condition and how these changes impact their caregivers. Through in-depth interviews with patients experiencing early Alzheimer's disease and frontotemporal dementia, the study aims to understand the evolution of their self-narratives and values. It also examines the effects of these changes on caregivers, focusing on the ethical dilemmas they face and the dynamics of their relationships with care recipients. By integrating insights from clinical neurology, philosophy, social science, and psychology, the research seeks to provide a comprehensive understanding of the interplay between dementia and personal values.
Why it matters
Potential benefit: If successful, this research could enhance the quality of care for dementia patients by informing caregivers and clinicians about the evolving values of their patients.
How similar studies have gone: While the exploration of personal values in dementia is a relatively novel approach, there have been successful studies examining the impact of dementia on patient and caregiver dynamics.
Where this research is happening
-
University of California, San Francisco
San Francisco, United States Active
Researchers
- Principal investigator: Chiong, Winston — University of California, San Francisco
- Study coordinator: Chiong, Winston
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.