Exceptional Longevity Data Center for Alzheimer’s and Related Dementias
Official title: Exceptional Longevity Data Management and Coordinating Center
Funded at Sage Bionetworks · NIH-11391066 · Data updated 2026-11-12
A national research effort to build and share data resources about aging, resilience, and dementia to help people better understand Alzheimer’s and related conditions.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Sage Bionetworks NIH-funded |
| Lab location | 1 site (Seattle, United States) |
| Project start | September 1, 2022 |
| Project end | July 31, 2027 |
| Funding year | 2026 |
| Award (this year) | $2,008,479 |
| NIH project number | 5U24AG078753-05 |
| Project ID | NIH-11391066 on NIH RePORTER |
Who could benefit from this research
✓Could help
People living with AD/ADRD or at risk for these conditions may indirectly benefit through faster research breakthroughs and improved care strategies stemming from the shared data resources.
✕Less likely to help
Direct participation by patients in this specific grant is not described; benefits come through accelerated research that may inform future trials and care.
What this research studies
This grant funds a data coordination center that connects researchers studying why some people live exceptionally long and stay healthy, with the goal of applying those lessons to Alzheimer’s disease and related dementias. It will create a dynamic catalog of data and resources, and run cross-team analyses to combine findings from aging and dementia studies. By coordinating multiple teams and datasets, it aims to accelerate discoveries that could reduce the impact of AD/ADRD on patients and families. The work emphasizes collaboration, data sharing, and methodological challenges to ensure high-quality, accessible information for researchers and clinicians.
Why it matters
Potential benefit: If successful, this project could speed up the discovery of protective factors against Alzheimer’s and related dementias, informing prevention and treatment strategies for patients.
How similar studies have gone: Previous data-coordination efforts in aging research have improved data sharing and cross-study analyses, supporting the value of this approach.
Where this research is happening
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Sage Bionetworks
Seattle, United States Active
Researchers
- Principal investigator: Varma, Susheel — Sage Bionetworks
- Study coordinator: Varma, Susheel
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.