Examining how discrimination affects kidney transplant access for patients with intellectual or developmental disabilities.
Official title: Impact of ableism and state laws designed to mitigate ableism on organ transplant equity for kidney transplant candidates with intellectual or developmental disabilities
Funded at Ohio State University · NIH-10992023 · Data updated 2026-11-12
This study looks at how laws against discrimination affect access to kidney transplants for people with intellectual or developmental disabilities, aiming to find ways to make sure everyone gets a fair chance at life-saving treatment.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Ohio State University NIH-funded |
| Lab location | 1 site (Columbus, UNITED STATES) |
| Project start | August 1, 2024 |
| Project end | June 30, 2029 |
| Funding year | 2024 |
| Award (this year) | $507,163 |
| NIH project number | 1R01HD116245-01 |
| Project ID | NIH-10992023 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are kidney transplant candidates who have intellectual or developmental disabilities.
✕Less likely to help
Patients without intellectual or developmental disabilities may not receive direct benefits from this research.
What this research studies
This research investigates the impact of ableism and state laws aimed at reducing discrimination on kidney transplant equity for patients with intellectual or developmental disabilities (IDD). It seeks to understand how these laws influence access to life-saving transplants and identify factors that may worsen disparities in care. By analyzing national Medicare claims data alongside local electronic health records, the research aims to determine the effectiveness of anti-discrimination laws and explore the reasons behind exclusion from transplantation. The findings could help inform policies to improve equity in organ transplantation.
Why it matters
Potential benefit: If successful, this research could lead to improved access to kidney transplants for patients with intellectual or developmental disabilities, enhancing their quality of life.
How similar studies have gone: While the specific focus on ableism in kidney transplantation is novel, previous research has shown that addressing discrimination can improve healthcare access for marginalized populations.
Where this research is happening
-
Ohio State University
Columbus, United States Active
Researchers
- Principal investigator: Hand, Brittany Nicole — Ohio State University
- Study coordinator: Hand, Brittany Nicole
Related research
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-
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.