Examining health outcomes and costs for children with congenital heart disease

Linking State Medicaid and Congenital Heart Surgical Registry Data: Building Capacity to Assess Disparities in Longitudinal Outcomes and Value for Children with Congenital Heart Disease

NIH-funded research Icahn School of Medicine at Mount Sinai · NIH-10978866

This study looks at how congenital heart disease affects children's health and healthcare costs over time, especially for those from different income levels, to help understand why some kids may not get the same care as others.

Quick facts

Grant typeR01 grant
Study typeNIH-funded research
Funding institutionIcahn School of Medicine at Mount Sinai NIH-funded
Lab location1 site (New York, United States)
Project IDNIH-10978866 on NIH RePORTER

What this research studies

This research investigates the long-term health outcomes and healthcare costs associated with congenital heart disease in children, particularly focusing on disparities based on socioeconomic status. By linking Medicaid data with surgical registry information, the study aims to identify patterns in healthcare utilization and outcomes for children from different income backgrounds. The research team, which includes pediatric cardiologists and health economists, will analyze data from over 15 years to uncover the mechanisms driving health inequities in this population.

Who could benefit from this research

Good fit: Ideal candidates for this research include children diagnosed with congenital heart disease, particularly those from low-income neighborhoods covered by Medicaid.

Not a fit: Patients without congenital heart disease or those not covered by Medicaid may not receive any benefit from this research.

Why it matters

Potential benefit: If successful, this research could lead to improved healthcare policies and interventions that reduce disparities in outcomes for children with congenital heart disease.

How similar studies have performed: Previous research has indicated disparities in outcomes for children with congenital heart disease, suggesting that this approach could yield valuable insights into improving care.

Where this research is happening

New York, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-10 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.