Evaluating community genomics resources for better data accessibility
DATA AND SOFTWARE RESOURCES ECOSYSTEM
This study is looking at how easy it is for researchers to find and use community genomics resources, and it’s for anyone interested in improving access to genetic data and tools for better research.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Bioteam, INC. NIH-funded |
| Lab location | 1 site (Middleton, United States) |
| Project ID | NIH-11215993 on NIH RePORTER |
What this research studies
This research focuses on assessing community genomics resources funded by the NHGRI to ensure they meet the FAIR principles, which stand for Findable, Accessible, Interoperable, and Reusable. The project will involve a two-phase approach: first, using a Self-Assessment Tool to evaluate how well these resources adhere to established standards, and second, potentially organizing a workshop to engage with researchers and institutional stakeholders. By conducting interviews with resource owners, the research aims to identify challenges and gaps in data accessibility and usability. The ultimate goal is to enhance the ecosystem of genomics data and software resources.
Who could benefit from this research
Good fit: Ideal candidates for benefiting from this research include patients involved in genomic studies or those whose conditions could be better understood through enhanced data accessibility.
Not a fit: Patients who are not engaged in genomic research or do not have conditions related to genomics may not receive direct benefits from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved access and usability of genomics data for researchers and healthcare providers, ultimately benefiting patients through better-informed medical decisions.
How similar studies have performed: Other research has shown success in improving data accessibility and usability through similar assessments and community engagement strategies.
Where this research is happening
Middleton, United States
- Bioteam, INC. — Middleton, United States (Active)
Researchers
- Principal investigator: Jessel, Cindy — Bioteam, INC.
- Study coordinator: Jessel, Cindy
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.