Evaluating community genomics resources for better data accessibility
Official title: DATA AND SOFTWARE RESOURCES ECOSYSTEM
Funded at Bioteam, INC. · NIH-11215993 · Data updated 2026-11-12
This study is looking at how easy it is for researchers to find and use community genomics resources, and it’s for anyone interested in improving access to genetic data and tools for better research.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Bioteam, INC. NIH-funded |
| Lab location | 1 site (Middleton, United States) |
| Project start | June 7, 2024 |
| Project end | September 14, 2026 |
| Funding year | 2024 |
| Award (this year) | $300,000 |
| NIH project number | 92023A03792024F00001-0-0-1 |
| Project ID | NIH-11215993 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for benefiting from this research include patients involved in genomic studies or those whose conditions could be better understood through enhanced data accessibility.
✕Less likely to help
Patients who are not engaged in genomic research or do not have conditions related to genomics may not receive direct benefits from this research.
What this research studies
This research focuses on assessing community genomics resources funded by the NHGRI to ensure they meet the FAIR principles, which stand for Findable, Accessible, Interoperable, and Reusable. The project will involve a two-phase approach: first, using a Self-Assessment Tool to evaluate how well these resources adhere to established standards, and second, potentially organizing a workshop to engage with researchers and institutional stakeholders. By conducting interviews with resource owners, the research aims to identify challenges and gaps in data accessibility and usability. The ultimate goal is to enhance the ecosystem of genomics data and software resources.
Why it matters
Potential benefit: If successful, this research could lead to improved access and usability of genomics data for researchers and healthcare providers, ultimately benefiting patients through better-informed medical decisions.
How similar studies have gone: Other research has shown success in improving data accessibility and usability through similar assessments and community engagement strategies.
Where this research is happening
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Bioteam, INC.
Middleton, United States Active
Researchers
- Principal investigator: Jessel, Cindy — Bioteam, INC.
- Study coordinator: Jessel, Cindy
Related research
Other NIH-funded projects on the same topics.
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A platform for community health research and data sharing.
This study is all about creating a friendly platform that helps people in the community share health information and work together, so everyone can get better health resources and support that fits their needs.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.