Estimating the national costs of Alzheimer's and related dementias

The United States Cost of Dementia Model: Quantifying Current and Future Impacts of Alzheimer’s Disease and Related Dementias

NIH-funded research University of Southern California · NIH-11319737

Creating a national model to measure how much Alzheimer's and related dementias cost patients, families, and society each year.

Quick facts

Grant typeU01 cooperative agreement
Study typeNIH-funded research
Funding institutionUniversity of Southern California NIH-funded
Lab location1 site (Los Angeles, UNITED STATES)
Project IDNIH-11319737 on NIH RePORTER

What this research studies

This project will build a national model that estimates the annual, societal costs of Alzheimer's disease and related dementias across medical care, long-term services, and unpaid caregiving. It will combine multiple U.S. data sources to capture indirect costs like lost work, future income and wealth losses, caregiver health and quality-of-life impacts, and costs from financial abuse and participation in trials. The team will produce reproducible, annual cost estimates and create infrastructure to expand national research capacity related to dementia costs. Results are intended to help policymakers, payers, and service providers plan supports for people living with dementia and their caregivers.

Who could benefit from this research

Good fit: People living with Alzheimer's disease or related dementias and their unpaid caregivers (age 21+) are the populations whose experiences and data this project focuses on and who could be represented in the model.

Not a fit: This modeling project is not a treatment trial, so participants should not expect direct clinical benefits or new medical therapies from taking part.

Why it matters

Potential benefit: If successful, the project could help direct resources and policies to better support people living with dementia and their unpaid caregivers by revealing the true economic burden.

How similar studies have performed: Earlier studies have estimated dementia costs but often omitted key components like full caregiver impacts, so this effort expands and formalizes those approaches to give a more complete national picture.

Where this research is happening

Los Angeles, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions Alzheimer disease dementiaAlzheimer syndromeAlzheimer's DiseaseAlzheimer's Disease and its related dementias
Last reviewed 2026-06-10 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.