Engaging the Disability Community in a National Health Program
Official title: Disability Community Engagement Partner Project
Funded at American Assn on Health and Disability · NIH-11321804 · Data updated 2026-11-12
This project helps people with disabilities join the 'All of Us' Research Program, which aims to gather health information from one million or more Americans to advance personalized medicine.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | American Assn on Health and Disability NIH-funded |
| Lab location | 1 site (Rockville, United States) |
| Project start | July 1, 2021 |
| Project end | June 30, 2026 |
| Funding year | 2025 |
| Award (this year) | $1,000,000 |
| NIH project number | 3OT2OD031916-01S4 |
| Project ID | NIH-11321804 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal participants are individuals from the disability community who are interested in contributing their health data to a large national research program.
✕Less likely to help
Patients who are not interested in sharing their health information for research purposes or who do not identify with the disability community may not find direct benefit from this specific engagement project.
What this research studies
The 'All of Us' Research Program is a large national effort by the NIH to collect health data from a diverse group of people, including those with disabilities, to better understand health and disease. This project specifically focuses on making it easier for individuals in the disability community to participate. By joining, you can contribute your health information to a vast database that researchers will use to develop more personalized healthcare approaches. The goal is to ensure that future medical treatments and prevention strategies work well for everyone.
Why it matters
Potential benefit: If successful, this effort will ensure that the health experiences and needs of people with disabilities are well-represented in future medical discoveries, leading to more inclusive and effective healthcare.
How similar studies have gone: The 'All of Us' Research Program is a novel, large-scale initiative, and this project builds on established community engagement principles to ensure broad participation.
Where this research is happening
-
American Assn on Health and Disability
Rockville, United States Active
Researchers
- Principal investigator: Forber-Pratt, Anjali J — American Assn on Health and Disability
- Study coordinator: Forber-Pratt, Anjali J
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.