Engaging patients with low-grade glioma for better research participation
Participant Engagement Unit
This study is all about finding better ways to connect with and involve people who have low-grade glioma, so we can gather important information and samples to learn more about the condition, while also keeping you updated on how your participation is helping.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Yale University NIH-funded |
| Lab location | 1 site (New Haven, United States) |
| Project ID | NIH-10927351 on NIH RePORTER |
What this research studies
This research focuses on improving the recruitment and engagement of patients with low-grade glioma (LGG) through innovative methods. By collaborating with patient organizations and utilizing web-based tools and social media, the project aims to create a comprehensive registry for LGG patients. The goal is to enroll 700 patients, collect vital clinical and epidemiological data, and gather biological specimens to enhance understanding of the disease. Additionally, the research will develop effective communication strategies to keep patients informed about study results and their individual contributions.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals aged 21 and older diagnosed with low-grade glioma.
Not a fit: Patients with other types of brain tumors or those under 21 years old may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to more effective recruitment strategies and better outcomes for patients with low-grade glioma.
How similar studies have performed: Previous research has shown success in using patient engagement strategies and web-based tools for recruiting participants in clinical studies.
Where this research is happening
New Haven, United States
- Yale University — New Haven, United States (Active)
Researchers
- Principal investigator: Claus, Elizabeth B. — Yale University
- Study coordinator: Claus, Elizabeth B.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.