Emergency planning help for spouses caring for someone with dementia
Caregivers Preparing for Their Own Health Care Emergency
['FUNDING_R21'] · UNIVERSITY OF CALIFORNIA AT DAVIS · NIH-11180501
This project offers an online toolkit to help spouses who care for a person with dementia create a clear emergency plan so someone can step in if they become ill.
Quick facts
| Phase | ['FUNDING_R21'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF CALIFORNIA AT DAVIS (nih funded) |
| Locations | 1 site (DAVIS, UNITED STATES) |
| Trial ID | NIH-11180501 on ClinicalTrials.gov |
What this research studies
You would use an online Emergency Preparedness Toolkit that walks you through documenting daily care needs, medical and legal information, and instructions for a standby caregiver. The team will tailor the online guidance to your situation and offer extra coaching to some participants to see if that helps more people finish their plans. Caregivers will give feedback and the researchers will track whether people complete the toolkit and feel more prepared. The goal is to make it easier for you to name someone who can take over temporarily and reduce disruption if you have a health emergency.
Who could benefit from this research
Good fit: Ideal participants are spouses who are the primary caregivers for a person living with dementia and who can use an online program.
Not a fit: People who are not the primary or spousal caregiver, those caring for someone without dementia, or those without reliable internet access may not benefit from this online toolkit.
Why it matters
Potential benefit: If successful, this could help caregivers complete usable emergency plans, reduce disruptions in care when a caregiver becomes ill, and lower caregiver stress.
How similar studies have performed: A prior paper-based version of the toolkit helped some caregivers but many stalled, so this online, tailored approach builds on that work to try to improve completion.
Where this research is happening
DAVIS, UNITED STATES
- UNIVERSITY OF CALIFORNIA AT DAVIS — DAVIS, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: BOXER, REBECCA SUE — UNIVERSITY OF CALIFORNIA AT DAVIS
- Study coordinator: BOXER, REBECCA SUE
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.