Embedding clinical tools into electronic records for myasthenia gravis care
Project 1 Clinical Procedures to Support Research in Myasthenia Gravis (CAPTURE_MG)
This project adds a simple toolkit into doctors' electronic health records to collect consistent clinical information about people with myasthenia gravis during routine care.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | George Washington University NIH-funded |
| Lab location | 1 site (Washington, United States) |
| Project ID | NIH-11171995 on NIH RePORTER |
What this research studies
If you get care at a participating center, clinicians will use a new MG-Toolkit built into the Epic medical record to record symptoms, treatments, and side effects in a consistent way. The toolkit uses SmartForms so visits stay efficient and low-burden for patients and clinicians. Collected information from multiple academic centers will be combined into a de-identified central database to track real-world treatment responses and adverse events. That pooled data will support comparisons between therapies, phase 4 studies, and future biomarker research.
Who could benefit from this research
Good fit: People living with myasthenia gravis who receive care at one of the participating Epic-equipped academic centers and agree to have their clinical data included are ideal candidates.
Not a fit: Patients who do not receive care at participating centers, opt out of data sharing, or who do not have myasthenia gravis are unlikely to benefit directly from this project.
Why it matters
Potential benefit: If successful, this could help identify which treatments work best for different patients and improve monitoring of side effects in routine care.
How similar studies have performed: This approach is modeled on the successful ALS-Toolkit from the CReATe Consortium, which demonstrated feasibility of EHR-integrated standardized data capture, while its specific use in MG is newer.
Where this research is happening
Washington, United States
- George Washington University — Washington, United States (Active)
Researchers
- Principal investigator: Kaminski, Henry J — George Washington University
- Study coordinator: Kaminski, Henry J
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.