ELP1 and SHH-type childhood medulloblastoma risk

Characterization of ELP1 as a novel SHH medulloblastoma predisposition gene

NIH-funded research St. Jude Children's Research Hospital · NIH-11178023

This work looks at whether inherited changes in the ELP1 gene increase the chance of SHH-subgroup medulloblastoma in children.

Quick facts

Grant typeP01 program project
Study typeNIH-funded research
Funding institutionSt. Jude Children's Research Hospital NIH-funded
Lab location1 site (Memphis, United States)
Project IDNIH-11178023 on NIH RePORTER

What this research studies

If your child has SHH-subgroup medulloblastoma, researchers are comparing DNA from over 1,000 affected children to find damaging inherited (germline) changes in the ELP1 gene. They use laboratory experiments, including CRISPR-based cell and animal models, to see how loss of ELP1 changes tumor growth and interacts with other cancer genes like PTCH1, PPM1D, and MDM4. Tumor sequencing and molecular profiling are used to connect genetic findings with tumor features and clinical behavior. The goal is to clarify inherited risk and the underlying biology so families and clinicians can consider better monitoring or targeted approaches in the future.

Who could benefit from this research

Good fit: Children with SHH-subgroup medulloblastoma or families of a child diagnosed with SHH-MB—especially early-onset cases—are the most relevant candidates for related studies or genetic testing.

Not a fit: Patients with non-SHH medulloblastoma subgroups (WNT, Group 3, Group 4) or tumors driven solely by other mechanisms are unlikely to receive direct benefit from ELP1-focused findings.

Why it matters

Potential benefit: If successful, this work could support genetic testing to identify children and family members at higher inherited risk and inform surveillance or tailored treatments.

How similar studies have performed: Germline sequencing has previously found other medulloblastoma predisposition genes, but implicating ELP1 as a predisposition factor is a newer finding now being validated with functional work.

Where this research is happening

Memphis, United States

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Last reviewed 2026-06-13 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.