eHealth decision tool to help cancer patients facing tumor genomic testing
Full Research Project 1: Testing the Efficacy of an eHealth Decision Support Tool to Help Cancer Patients Make informed Decisions About Tumor Genomic Testing
This project tests an online decision tool to help people with cancer understand tumor genomic testing and decide whether to receive information about hereditary risks.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Temple Univ of the Commonwealth NIH-funded |
| Lab location | 1 site (Philadelphia, United States) |
| Project ID | NIH-11189656 on NIH RePORTER |
What this research studies
From a patient's point of view, the team is revising an online decision support tool called Gene PilotLX based on earlier testing and input from community and scientific advisors. People offered tumor genomic profiling will be offered the electronic tool or usual decision support so researchers can compare how well each helps people make informed choices. The project uses outreach tailored to the catchment area and builds on prior randomized results and formative interviews with local patients. The goal is to improve how patients understand secondary genetic findings and talk with their providers about preferences.
Who could benefit from this research
Good fit: Adults with cancer who are being offered tumor genomic profiling within Temple University's catchment area or participating clinics, especially those facing decisions about secondary hereditary results, are ideal candidates.
Not a fit: People who are not having tumor genomic testing, who decline to use an online decision tool, or who live outside the study’s recruitment area are unlikely to benefit from this project.
Why it matters
Potential benefit: If successful, the tool could make it easier for patients to understand genomic testing results and to make choices about learning hereditary risk information, improving communication with clinicians.
How similar studies have performed: Earlier randomized work with the original Gene Pilot decision tool showed promising results and this study builds on those findings with a revised Gene PilotLX.
Where this research is happening
Philadelphia, United States
- Temple Univ of the Commonwealth — Philadelphia, United States (Active)
Researchers
- Principal investigator: Bass, Sarah B — Temple Univ of the Commonwealth
- Study coordinator: Bass, Sarah B
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.