DREF Research Matters: Engaging Families and Researchers to Build a National Health Dataset
Official title: DREF Research Matters: Creating Possibilities to Achieve Health and Wellness for All of Us Through Community and Researcher Engagement, Enrollment and Retention
Funded at Delta Research and Educational Foundation · NIH-11539113 · Data updated 2026-11-12
A community and researcher engagement effort to help build a national health dataset for All of Us by educating adults and parents of school‑aged children and encouraging participation.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Delta Research and Educational Foundation NIH-funded |
| Lab location | 1 site (Washington, United States) |
| Project start | July 1, 2023 |
| Project end | June 30, 2027 |
| Funding year | 2026 |
| Award (this year) | $2,900,000 |
| NIH project number | 3OT2OD036098-01S3 |
| Project ID | NIH-11539113 on NIH RePORTER |
Who could benefit from this research
✓Could help
Adults, including parents of school‑aged children, who are potential All of Us participants and willing to learn about and enroll in the program.
✕Less likely to help
Individuals not interested in participation or those outside All of Us eligibility criteria may not benefit directly.
What this research studies
This project aims to accelerate precision medicine by fostering participation in All of Us and increasing awareness of biomedical research among adults, especially parents of children. It will recruit and educate participants, explain the benefits of enrollment, and promote use of the All of Us Research Hub and Researcher Workbench to support multidisciplinary studies. By engaging communities and researchers, the program seeks to expand the national dataset with diverse data that could drive personalized health insights. The approach emphasizes clear communication, trust, and accessibility to encourage ongoing involvement over time.
Why it matters
Potential benefit: If successful, participants could gain access to information about personal health trends and contribute to research that advances precision medicine for their communities.
How similar studies have gone: Previous All of Us engagement efforts have shown that community education and outreach can increase enrollment and data diversity.
Where this research is happening
-
Delta Research and Educational Foundation
Washington, United States Active
Researchers
- Principal investigator: Thomas, Cheryl Marie — Delta Research and Educational Foundation
- Study coordinator: Thomas, Cheryl Marie
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.