Database and biobank for families with atypical diabetes
Data and Repository Core
['FUNDING_OTHER'] · BAYLOR COLLEGE OF MEDICINE · NIH-11076262
This project collects medical records, blood and tissue samples, and genetic data from people and families with new or unusual forms of diabetes to help find causes and improve care.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | BAYLOR COLLEGE OF MEDICINE (nih funded) |
| Locations | 1 site (HOUSTON, UNITED STATES) |
| Trial ID | NIH-11076262 on ClinicalTrials.gov |
What this research studies
If you or a family member have an unusual form of diabetes, this core gathers your health information through electronic forms and medical record uploads and invites a standard in-person visit for exams, labs, and images. It stores blood and other biospecimens in a repository and performs genomic, RNA, mitochondrial, and metabolomics testing. Investigators add clinical and genetic interpretations to the database so patterns in rare or new diabetes types can be recognized. The system uses a secure web interface that links lab data and clinical records to support multi-site collaboration.
Who could benefit from this research
Good fit: Ideal candidates are people and family members with new, unusual, or atypical forms of diabetes who can share medical records and provide biospecimens and, in many cases, attend an in-person visit for testing.
Not a fit: People with common, well-characterized type 1 or type 2 diabetes without unusual features, or those unwilling to share records or provide samples, are unlikely to benefit directly from this repository.
Why it matters
Potential benefit: If successful, this resource could help identify genetic causes of atypical diabetes and lead to more accurate diagnoses and personalized treatment options.
How similar studies have performed: Other genetic and biobank efforts have successfully identified causes for some rare diabetes types, but many atypical forms remain not yet explained.
Where this research is happening
HOUSTON, UNITED STATES
- BAYLOR COLLEGE OF MEDICINE — HOUSTON, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: YOUNG, KENNETH — BAYLOR COLLEGE OF MEDICINE
- Study coordinator: YOUNG, KENNETH
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.