CureGN kidney disease registry and patient network
CureGN
['FUNDING_OTHER'] · UNIVERSITY OF MICHIGAN AT ANN ARBOR · NIH-11166624
Collects health information and blood and urine samples from adults and children with four types of glomerular kidney disease to help improve diagnosis and care.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF MICHIGAN AT ANN ARBOR (nih funded) |
| Locations | 1 site (ANN ARBOR, UNITED STATES) |
| Trial ID | NIH-11166624 on ClinicalTrials.gov |
What this research studies
You would join a long-term, multi-center registry that follows adults and children with minimal change disease, focal segmental glomerulosclerosis (FSGS), immunoglobulin A nephropathy (IgAN), or membranous nephropathy (MN). The program collects medical records, patient-reported outcomes, and biospecimens (blood, urine, and sometimes tissue) over time to track how disease starts, progresses, and responds to treatments. Data and samples are managed by a central coordinating center and shared with researchers across many institutions to support clinical, mechanistic, and translational studies. Nearly 2,800 participants from more than 60 clinical sites are included, with ongoing follow-up through the project period.
Who could benefit from this research
Good fit: Ideal candidates are adults and children diagnosed with MCD, FSGS, IgAN, or MN who can provide medical records, patient-reported information, and biospecimens and who can attend follow-up visits.
Not a fit: People without one of the four specified glomerular diagnoses or those unwilling to provide records or biospecimens are unlikely to gain direct benefit from participation.
Why it matters
Potential benefit: If successful, this effort could help doctors identify better ways to diagnose, predict outcomes, and personalize care for people with these glomerular diseases.
How similar studies have performed: Other large kidney cohorts and registries have yielded valuable findings, and CureGN expands on those efforts with larger numbers and more detailed biospecimen and patient-reported data for these specific diseases.
Where this research is happening
ANN ARBOR, UNITED STATES
- UNIVERSITY OF MICHIGAN AT ANN ARBOR — ANN ARBOR, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: MARIANI, LAURA H — UNIVERSITY OF MICHIGAN AT ANN ARBOR
- Study coordinator: MARIANI, LAURA H
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.