CureGN at Penn: Glomerular Kidney Disease Registry
CureGN-Penn PCC
['FUNDING_U01'] · UNIVERSITY OF PENNSYLVANIA · NIH-11381255
Following children and adults with four types of primary glomerular kidney disease to collect health information and biological samples to improve future care.
Quick facts
| Phase | ['FUNDING_U01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF PENNSYLVANIA (nih funded) |
| Locations | 1 site (PHILADELPHIA, UNITED STATES) |
| Trial ID | NIH-11381255 on ClinicalTrials.gov |
What this research studies
If I join CureGN at Penn, my doctors will collect my medical records, blood and urine samples, and my own reports about symptoms and quality of life over time. The project follows people with minimal change disease (MCD), focal segmental glomerulosclerosis (FSGS), IgA nephropathy (IgAN), and membranous nephropathy (MN) at regular visits. Samples and data are stored in a central biobank and database and shared with approved researchers across a collaborative network. The team links clinical events, laboratory findings, and patient-reported outcomes to find patterns that could lead to better diagnosis and treatments.
Who could benefit from this research
Good fit: People of any age diagnosed with MCD, FSGS, IgAN, or MN who receive care at a participating CureGN clinical site are ideal candidates.
Not a fit: People without these specific glomerular diseases or those unable to attend visits at participating centers are unlikely to gain direct benefits from this project.
Why it matters
Potential benefit: Could help doctors understand disease courses and develop better, more personalized treatments for people with these glomerular kidney diseases.
How similar studies have performed: Large kidney disease cohorts have previously improved care and biomarker discovery, and CureGN is a larger, more deeply phenotyped effort building on that success.
Where this research is happening
PHILADELPHIA, UNITED STATES
- UNIVERSITY OF PENNSYLVANIA — PHILADELPHIA, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: HOLZMAN, LAWRENCE B. — UNIVERSITY OF PENNSYLVANIA
- Study coordinator: HOLZMAN, LAWRENCE B.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.