CRISPR gene editing for USH2A-related vision and hearing loss

CRISPR/Cas9-based gene editing approaches for the treatment of USH2A-associated diseases

['FUNDING_R01'] · MASSACHUSETTS EYE AND EAR INFIRMARY · NIH-11083018

Researchers are testing CRISPR/Cas9 gene editing to correct or bypass harmful USH2A mutations in people with USH2A-related retinitis pigmentosa or Usher Syndrome type II.

Quick facts

Phase['FUNDING_R01']
Study typeNih_funding
SexAll
SponsorMASSACHUSETTS EYE AND EAR INFIRMARY (nih funded)
Locations1 site (BOSTON, UNITED STATES)
Trial IDNIH-11083018 on ClinicalTrials.gov

What this research studies

This project aims to develop gene-editing approaches that can overcome the size limits of AAV delivery for the very large USH2A gene. Scientists will work on CRISPR/Cas9 methods and compare them with exon-skipping antisense oligonucleotides, using laboratory models and human-derived samples to refine the techniques. They will test whether these approaches can restore proper USH2A RNA or protein and protect the cells that support vision and hearing. The long-term goal is to produce therapies that could move into clinical trials for people with USH2A mutations.

Who could benefit from this research

Good fit: People with genetically confirmed pathogenic or likely pathogenic USH2A variants causing retinitis pigmentosa or Usher Syndrome type II would be the ideal candidates for related clinical testing or sample donation.

Not a fit: Patients whose mutations are not targetable by the specific editing or exon-skipping approaches, or those with very advanced retinal degeneration where photoreceptors are lost, may not receive benefit.

Why it matters

Potential benefit: If successful, these approaches could slow or prevent progressive vision loss and possibly hearing loss in people with USH2A mutations.

How similar studies have performed: Antisense oligonucleotide exon-skipping therapies for a common USH2A exon have entered clinical testing with some early encouraging signs, while CRISPR-based treatments for USH2A remain mainly preclinical.

Where this research is happening

BOSTON, UNITED STATES

Researchers

About this research

  1. This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
  2. Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
  3. For full project details, budget, and progress reports, visit the official NIH RePORTER page below.

View on NIH RePORTER →

Last reviewed 2026-05-15 by the Find a Trial editorial team. Information on this page is for educational purposes and is not medical advice. Always consult qualified healthcare professionals about clinical trial participation.