Creating electronic tools to help patients choose genetic tests for cancer
Development and Implementation of ElectronicDecision Aids for Genetic Testing in Inherited Cancer Syndromes
['FUNDING_U01'] · MASSACHUSETTS GENERAL HOSPITAL · NIH-10914065
This study is creating helpful tools to guide patients in making smart choices about genetic testing for hereditary cancer, especially since there aren't enough genetic counselors to go around.
Quick facts
| Phase | ['FUNDING_U01'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | MASSACHUSETTS GENERAL HOSPITAL (nih funded) |
| Locations | 1 site (BOSTON, UNITED STATES) |
| Trial ID | NIH-10914065 on ClinicalTrials.gov |
What this research studies
This research focuses on developing electronic decision aids to assist patients in making informed choices about genetic testing for hereditary cancer syndromes. With the increasing demand for genetic testing and a shortage of genetic counselors, these tools aim to provide essential information about testing options, outcomes, and risks. The decision aids will help clarify personal preferences and promote shared decision-making, especially when selecting from complex multi-gene panels. By enhancing communication and understanding, the project seeks to empower patients in their healthcare decisions.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals at risk for hereditary cancer syndromes who are considering genetic testing.
Not a fit: Patients who do not have a family history of cancer or those who are not considering genetic testing may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could significantly improve patient understanding and decision-making regarding genetic testing for cancer, leading to better-targeted therapies.
How similar studies have performed: Previous research has shown that decision aids can effectively improve patient understanding and satisfaction in complex medical decisions, indicating a promising approach.
Where this research is happening
BOSTON, UNITED STATES
- MASSACHUSETTS GENERAL HOSPITAL — BOSTON, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: CHUNG, DANIEL C — MASSACHUSETTS GENERAL HOSPITAL
- Study coordinator: CHUNG, DANIEL C
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Cancer Patient, Cancers