Creating a way to measure financial struggles for people with dementia and their caregivers
Official title: Developing an Inclusive Measure of Financial Hardship for People Living with Dementia and their Care Contributors
Funded at University of Utah · NIH-10973506 · Data updated 2026-11-12
This study is creating a new way to understand the financial struggles faced by people with Alzheimer's and their caregivers, so we can better support them in managing their unique challenges.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Utah NIH-funded |
| Lab location | 1 site (Salt Lake City, United States) |
| Project start | August 15, 2024 |
| Project end | June 30, 2029 |
| Funding year | 2024 |
| Award (this year) | $605,072 |
| NIH project number | 1R01AG088560-01 |
| Project ID | NIH-10973506 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include individuals aged 21 and older who are living with Alzheimer's disease or related dementias, as well as their caregivers.
✕Less likely to help
Patients who do not have a diagnosis of Alzheimer's disease or related dementias, or who are not involved in caregiving, may not benefit from this research.
What this research studies
This research aims to develop a new tool to measure financial hardship specifically for individuals living with Alzheimer's disease and related dementias (AD/ADRD) and their caregivers. It recognizes that these individuals face unique financial challenges that are often overlooked, as existing measures do not adequately capture their experiences. By focusing on this vulnerable population, the research seeks to identify the extent of financial burden and its impact on their health and well-being. The methodology will involve gathering data from affected individuals and caregivers to create a validated measure that reflects their specific needs.
Why it matters
Potential benefit: If successful, this research could lead to better support and interventions for individuals with dementia and their caregivers, improving their financial stability and overall quality of life.
How similar studies have gone: While there has been research on financial hardship in other chronic diseases, this approach focusing specifically on dementia and its caregivers is novel and has not been extensively tested.
Where this research is happening
-
University of Utah
Salt Lake City, United States Active
Researchers
- Principal investigator: Bybee, Sara — University of Utah
- Study coordinator: Bybee, Sara
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.