Creating a tool to help families and doctors make treatment decisions for children with juvenile idiopathic arthritis.
Official title: Developing a tool to support shared decision making in JIA between adolescents, parents, and providers
Funded at University of Alabama at Birmingham · NIH-10917272 · Data updated 2026-11-12
This study is creating a helpful tool for teenagers with juvenile idiopathic arthritis and their parents to make better treatment choices together with their doctors, making sure everyone's preferences are considered for a more satisfying care experience.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Alabama at Birmingham NIH-funded |
| Lab location | 1 site (Birmingham, United States) |
| Project start | September 15, 2023 |
| Project end | August 31, 2028 |
| Funding year | 2024 |
| Award (this year) | $175,932 |
| NIH project number | 5K23AR081410-02 |
| Project ID | NIH-10917272 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include adolescents aged 0-21 diagnosed with juvenile idiopathic arthritis and their parents.
✕Less likely to help
Patients without a diagnosis of juvenile idiopathic arthritis or those outside the age range of 0-21 may not benefit from this research.
What this research studies
This research aims to develop a decision-making tool that facilitates shared decision-making between adolescents with juvenile idiopathic arthritis (JIA), their parents, and healthcare providers. By understanding the preferences and experiences of both adolescents and parents, the project seeks to improve personalized treatment options for JIA, a chronic condition that requires long-term management. The approach involves evaluating how different treatment options are perceived and accepted by families, ultimately aiming to reduce confusion and enhance satisfaction with care.
Why it matters
Potential benefit: If successful, this research could lead to better treatment decisions and improved quality of life for children with juvenile idiopathic arthritis.
How similar studies have gone: Previous research has shown that shared decision-making approaches can significantly improve patient satisfaction and treatment adherence in chronic illness management.
Where this research is happening
-
University of Alabama at Birmingham
Birmingham, United States Active
Researchers
- Principal investigator: Mannion, Melissa — University of Alabama at Birmingham
- Study coordinator: Mannion, Melissa
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.