Creating a system to monitor Alzheimer's disease and related dementias in the U.S.
Official title: Developing and Evaluating a Surveillance System for Alzheimer's Dementia In the United States
Funded at National Opinion Research Center · NIH-11035112 · Data updated 2026-11-12
This study is working on a new system to keep track of Alzheimer's and related dementias in the U.S. by using Medicare and Medicaid data, so we can better understand how these conditions affect different groups of people, especially those from diverse backgrounds and lower-income families, and ultimately help improve care and support for patients and their caregivers.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | National Opinion Research Center NIH-funded |
| Lab location | 1 site (Chicago, United States) |
| Project start | March 1, 2022 |
| Project end | February 28, 2027 |
| Funding year | 2025 |
| Award (this year) | $473,463 |
| NIH project number | 5R01AG075730-04 |
| Project ID | NIH-11035112 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research include individuals aged 65 and older who are diagnosed with Alzheimer's disease or related dementias.
✕Less likely to help
Patients under the age of 65 or those without a diagnosis of Alzheimer's disease or related dementias may not benefit from this research.
What this research studies
This research aims to develop a comprehensive surveillance system to track Alzheimer's disease and related dementias (ADRD) across the United States. By utilizing Medicare and Medicaid data, the project will monitor diagnoses and assess the impact of these conditions on various populations, including racial and ethnic minorities and low-income groups. The system will also facilitate research into the correlation between diagnosed dementia and assessed cognitive decline, ultimately aiming to improve understanding of health disparities. Patients and caregivers will benefit from enhanced data availability, which can inform better care and policy decisions.
Why it matters
Potential benefit: If successful, this research could lead to improved tracking and understanding of Alzheimer's disease, ultimately enhancing patient care and resource allocation.
How similar studies have gone: Previous research has successfully utilized Medicare and Medicaid data for health surveillance, indicating a promising approach for this novel system.
Where this research is happening
-
National Opinion Research Center
Chicago, United States Active
Researchers
- Principal investigator: Rein, David B — National Opinion Research Center
- Study coordinator: Rein, David B
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.