Creating a shared database for rare bone and smooth muscle cancers.
Engagement Optimization Unit
This study is all about helping people with osteosarcoma and leiomyosarcoma by gathering important information from patients like you to find better treatments and improve care, and it includes creating special websites just for these cancer communities to make it easy for you to get involved.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Broad Institute, INC. NIH-funded |
| Lab location | 1 site (Cambridge, United States) |
| Project ID | NIH-10930692 on NIH RePORTER |
What this research studies
This research focuses on osteosarcoma and leiomyosarcoma, two rare types of cancer that affect bone and smooth muscle. The project aims to engage both adult and pediatric patients to build a comprehensive database that includes clinical, genomic, and patient-reported data. By collaborating with patients, the research seeks to accelerate the discovery of new treatment strategies and improve standards of care. The initiative will involve the development of two dedicated websites for the osteosarcoma and leiomyosarcoma communities to facilitate patient participation.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals diagnosed with osteosarcoma or leiomyosarcoma, including both children and adults.
Not a fit: Patients with other types of cancer or those not diagnosed with osteosarcoma or leiomyosarcoma may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment options and outcomes for patients with osteosarcoma and leiomyosarcoma.
How similar studies have performed: Previous research has shown success in building patient-partnered databases for rare diseases, indicating a promising approach for this initiative.
Where this research is happening
Cambridge, United States
- Broad Institute, INC. — Cambridge, United States (Active)
Researchers
- Principal investigator: Mack, Jennifer W — Broad Institute, INC.
- Study coordinator: Mack, Jennifer W
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.