Creating a shared database for rare bone and smooth muscle cancers.
Participant Engagement Unit
['FUNDING_OTHER'] · BROAD INSTITUTE, INC. · NIH-10930690
This study invites adults and kids with osteosarcoma or leiomyosarcoma to share their experiences and information to help create a helpful database that could lead to better treatments and care for these rare cancers.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | BROAD INSTITUTE, INC. (nih funded) |
| Locations | 1 site (CAMBRIDGE, UNITED STATES) |
| Trial ID | NIH-10930690 on ClinicalTrials.gov |
What this research studies
This research aims to engage both adult and pediatric patients diagnosed with osteosarcoma (OS) and leiomyosarcoma (LMS) to collaboratively build a comprehensive database of clinical, genomic, and patient-reported data. By leveraging patient experiences and genomic characterization, the project seeks to accelerate the discovery of new treatment strategies and improve standards of care. The initiative will involve the development of two dedicated websites for the OS and LMS communities, where patients can contribute their data and insights. The goal is to recruit 3,000 participants to enhance understanding and treatment of these rare cancers.
Who could benefit from this research
Good fit: Ideal candidates for participation include individuals diagnosed with osteosarcoma or leiomyosarcoma, both adults and children.
Not a fit: Patients with other types of cancers or those not diagnosed with osteosarcoma or leiomyosarcoma may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved treatment options and outcomes for patients with osteosarcoma and leiomyosarcoma.
How similar studies have performed: Previous research initiatives focusing on patient engagement and data sharing in rare cancers have shown promise in improving treatment outcomes and understanding of the disease.
Where this research is happening
CAMBRIDGE, UNITED STATES
- BROAD INSTITUTE, INC. — CAMBRIDGE, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: PAINTER, CORRIE ANN — BROAD INSTITUTE, INC.
- Study coordinator: PAINTER, CORRIE ANN
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.