Creating a registry to improve health equity for those at risk of Alzheimer's disease.
The COEQUAL Registry: Creating Opportunities to IncreaseHealth Equity and Equality for Persons at Risk for Alzheimer Disease and Related Dementias.
This study is creating a registry to help people at risk of Alzheimer’s and related dementias, especially those from under-resourced communities, by finding better ways to involve them in research and make sure their voices are heard.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Washington University NIH-funded |
| Lab location | 1 site (Saint Louis, United States) |
| Project ID | NIH-10641914 on NIH RePORTER |
What this research studies
This research aims to establish the COEQUAL registry, which focuses on increasing health equity for individuals at risk of Alzheimer’s disease and related dementias. By engaging with under-resourced communities, the project seeks to develop effective strategies for recruiting, enrolling, and retaining participants in Alzheimer-related research. The approach involves collaboration between researchers, community members, and patient advocates to ensure diverse representation and address barriers to participation. The goal is to create a sustainable registry that can inform future research and interventions.
Who could benefit from this research
Good fit: Ideal candidates for this research are individuals aged 65 and older who are at risk for Alzheimer’s disease and related dementias, particularly from under-resourced communities.
Not a fit: Patients who are not at risk for Alzheimer’s disease or who do not belong to under-resourced communities may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved health outcomes and greater representation of under-resourced populations in Alzheimer’s disease research.
How similar studies have performed: Other research has shown success in using community-engaged approaches to improve recruitment and retention in health studies, indicating that this method could be effective.
Where this research is happening
Saint Louis, United States
- Washington University — Saint Louis, United States (Active)
Researchers
- Principal investigator: Balls-Berry, Joyce E. — Washington University
- Study coordinator: Balls-Berry, Joyce E.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.