Creating a personalized planning program for individuals with fetal alcohol spectrum disorders.
Developing a Scalable FASD-Informed Person-Centered Planning Intervention
['FUNDING_OTHER'] · UNIVERSITY OF ROCHESTER · NIH-10929943
This study is creating a personalized planning program to help teenagers and adults with fetal alcohol spectrum disorders (FASD) improve their quality of life as they transition into adulthood, by addressing their specific challenges and connecting them with supportive resources.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | UNIVERSITY OF ROCHESTER (nih funded) |
| Locations | 1 site (ROCHESTER, UNITED STATES) |
| Trial ID | NIH-10929943 on ClinicalTrials.gov |
What this research studies
This research aims to develop and test a personalized planning intervention specifically designed for adolescents and adults with fetal alcohol spectrum disorders (FASD). The intervention will focus on enhancing quality of life by addressing the unique barriers these individuals face, particularly during their transition to adulthood. Using evidence-based methods, the project will adapt existing planning frameworks and incorporate social support networks to create a scalable solution. The research will involve collaboration with individuals with FASD and other stakeholders to ensure the intervention meets their needs effectively.
Who could benefit from this research
Good fit: Ideal candidates for this research are adolescents and adults diagnosed with fetal alcohol spectrum disorders.
Not a fit: Patients without a diagnosis of fetal alcohol spectrum disorders or those who are not in the age range of adolescence to adulthood may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could significantly improve the quality of life for individuals with FASD by providing tailored support and resources.
How similar studies have performed: Previous research has shown success with similar person-centered planning approaches for other disabilities, suggesting potential for positive outcomes in this context.
Where this research is happening
ROCHESTER, UNITED STATES
- UNIVERSITY OF ROCHESTER — ROCHESTER, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: PETRENKO, CHRISTIE LYNN MCGEE — UNIVERSITY OF ROCHESTER
- Study coordinator: PETRENKO, CHRISTIE LYNN MCGEE
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.
Conditions: Child Development Disorders