Creating a personalized planning program for individuals with fetal alcohol spectrum disorders.
Official title: Developing a Scalable FASD-Informed Person-Centered Planning Intervention
Funded at University of Rochester · NIH-10929943 · Data updated 2026-11-12
This study is creating a personalized planning program to help teenagers and adults with fetal alcohol spectrum disorders (FASD) improve their quality of life as they transition into adulthood, by addressing their specific challenges and connecting them with supportive resources.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | University of Rochester NIH-funded |
| Lab location | 1 site (Rochester, United States) |
| Project start | September 20, 2023 |
| Project end | August 31, 2025 |
| Funding year | 2024 |
| Award (this year) | $286,155 |
| NIH project number | 5R61AA030780-02 |
| Project ID | NIH-10929943 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are adolescents and adults diagnosed with fetal alcohol spectrum disorders.
✕Less likely to help
Patients without a diagnosis of fetal alcohol spectrum disorders or those who are not in the age range of adolescence to adulthood may not benefit from this research.
What this research studies
This research aims to develop and test a personalized planning intervention specifically designed for adolescents and adults with fetal alcohol spectrum disorders (FASD). The intervention will focus on enhancing quality of life by addressing the unique barriers these individuals face, particularly during their transition to adulthood. Using evidence-based methods, the project will adapt existing planning frameworks and incorporate social support networks to create a scalable solution. The research will involve collaboration with individuals with FASD and other stakeholders to ensure the intervention meets their needs effectively.
Why it matters
Potential benefit: If successful, this research could significantly improve the quality of life for individuals with FASD by providing tailored support and resources.
How similar studies have gone: Previous research has shown success with similar person-centered planning approaches for other disabilities, suggesting potential for positive outcomes in this context.
Where this research is happening
-
University of Rochester
Rochester, United States Active
Researchers
- Principal investigator: Petrenko, Christie Lynn Mcgee — University of Rochester
- Study coordinator: Petrenko, Christie Lynn Mcgee
Related research
Other NIH-funded projects on the same topics.
-
Rapid automated breast lump diagnosis without a radiologist or sonographer
A new AI-powered ultrasound tool helps determine if a palpable breast lump is likely benign or malignant, using a simplified technique that can be used by people with minimal ultrasound training.
-
ML-ROVER: Reducing Unneeded Lab Tests in Kids with AI
Aims to use machine learning to cut unnecessary blood tests in children in intensive care, helping avoid anemia and improve care quality.
-
Aggressive fever-reducing therapy to protect the brains of children with CNS malaria
A study planned for children with CNS malaria will test whether aggressive fever-reducing treatment can lower death and brain-related problems.
-
Aggressive fever-reducing therapy to protect brains in children with CNS malaria
A plan to test whether giving strong fever-reducing medications to children with central nervous system malaria can lower death and brain injury.
-
Aggressive fever-fighting treatment to protect the brain in kids with CNS malaria
A plan to test whether giving strong fever-reducing treatment alongside standard care can lower death and brain injury in children with CNS malaria.
-
Aggressive fever-reducing treatment to protect brains in kids with CNS malaria
A plan to test whether giving strong fever-reducing medicine alongside standard malaria treatment can lower deaths and brain injuries in children with CNS malaria.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.