Creating a new behavior assessment tool for children with Down syndrome
Behavior Measure for Children and Adolescents with Down Syndrome
This study is creating a new tool to help understand the behavior of children and teens with Down syndrome, making sure it reflects their unique needs, and it will be available in both English and Spanish for families to use.
Quick facts
| Grant type | R01 grant |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Cincinnati Childrens Hosp Med Ctr NIH-funded |
| Lab location | 1 site (Cincinnati, United States) |
| Project ID | NIH-10915020 on NIH RePORTER |
What this research studies
This research aims to develop and validate a new behavioral assessment tool specifically designed for children and adolescents with Down syndrome. The project addresses a significant gap in existing measures, which often overlook the unique behavioral concerns associated with Down syndrome. By incorporating feedback from families and clinical practices, the new tool, called the Behavior Inventory for Down Syndrome (BIDS), will provide reliable and valid outcomes for evaluating behavioral issues. The research will be conducted in both English and Spanish to ensure accessibility for diverse populations.
Who could benefit from this research
Good fit: Ideal candidates for this research are children and adolescents aged 2 to 17 years who have been diagnosed with Down syndrome.
Not a fit: Patients who do not have Down syndrome or are outside the age range of 2 to 17 years may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could lead to improved identification and treatment of behavioral concerns in children with Down syndrome, enhancing their quality of life.
How similar studies have performed: While there has been research on behavioral assessments in general, this specific approach tailored for Down syndrome is novel and has not been extensively tested.
Where this research is happening
Cincinnati, United States
- Cincinnati Childrens Hosp Med Ctr — Cincinnati, United States (Active)
Researchers
- Principal investigator: Esbensen, Anna J. — Cincinnati Childrens Hosp Med Ctr
- Study coordinator: Esbensen, Anna J.
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.