Creating a national consortium to improve ALS research and treatment access
Official title: Access for All in ALS (ALL ALS) East Clinical Coordinating Center
Funded at Massachusetts General Hospital · NIH-10878218 · Data updated 2026-11-12
This study is creating a group of research centers to work together on finding better treatments for ALS, making sure that everyone, especially those who are often left out, can join in and benefit from new therapies.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Massachusetts General Hospital NIH-funded |
| Lab location | 1 site (Boston, United States) |
| Project start | September 25, 2023 |
| Project end | September 24, 2025 |
| Funding year | 2023 |
| Award (this year) | $19,708,528 |
| NIH project number | 1OT2NS136938-01 |
| Project ID | NIH-10878218 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for participation include individuals diagnosed with ALS and those who are genetically at risk for developing the disease.
✕Less likely to help
Patients with other neurological conditions unrelated to ALS may not receive direct benefits from this research.
What this research studies
This research aims to establish the Access for All in ALS (ALL ALS) Consortium, which will enhance the coordination of clinical research for Amyotrophic Lateral Sclerosis (ALS). The consortium will include multiple clinical sites across the United States and Puerto Rico, focusing on collecting and analyzing data from individuals living with ALS and those at genetic risk. By leveraging a centralized infrastructure, the project seeks to streamline drug development and improve access to innovative therapies for ALS patients. The consortium will also emphasize inclusivity, particularly for underrepresented populations in ALS research.
Why it matters
Potential benefit: If successful, this research could significantly accelerate the development of effective treatments for ALS, improving outcomes for patients.
How similar studies have gone: Previous research initiatives have shown promise in improving ALS treatment access and outcomes through coordinated efforts, indicating a strong potential for success with this approach.
Where this research is happening
-
Massachusetts General Hospital
Boston, United States Active
Researchers
- Principal investigator: Berry, James Dale — Massachusetts General Hospital
- Study coordinator: Berry, James Dale
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.