Creating a data resource center to support pediatric research.
Kids First Data Resource Center (KFDRC): Harnessing Data-Driven Opportunities in the Present on behalf of the Future of Common Fund Data Ecosystem (CFDE)
['FUNDING_OTHER'] · CHILDREN'S HOSP OF PHILADELPHIA · NIH-11093820
This study is working to create a helpful resource for understanding childhood brain tumors by bringing together experts and data from different places, so we can improve research and treatments for kids with these conditions.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | CHILDREN'S HOSP OF PHILADELPHIA (nih funded) |
| Locations | 1 site (PHILADELPHIA, UNITED STATES) |
| Trial ID | NIH-11093820 on ClinicalTrials.gov |
What this research studies
This research aims to establish a comprehensive data resource center focused on pediatric conditions, particularly childhood brain tumors. By collaborating with various data coordinating centers, the project will enhance data sharing and bioinformatics capabilities, ultimately improving research outcomes for children. The team consists of experts in pediatric oncology, bioinformatics, and cloud-based data analysis, who will work together to develop tools and infrastructure that facilitate the use of large-scale data in understanding childhood diseases. This initiative will also ensure ethical considerations and interoperability among different data systems.
Who could benefit from this research
Good fit: Ideal candidates for this research are children aged 0-11 years who are affected by or at risk for childhood brain tumors.
Not a fit: Patients outside the age range of 0-11 years or those with conditions unrelated to the focus of this research may not receive any benefit.
Why it matters
Potential benefit: If successful, this research could significantly improve the understanding and treatment of childhood brain tumors and other pediatric conditions through enhanced data utilization.
How similar studies have performed: Previous research initiatives that have utilized large-scale data coordination and bioinformatics have shown promising results in improving pediatric healthcare outcomes.
Where this research is happening
PHILADELPHIA, UNITED STATES
- CHILDREN'S HOSP OF PHILADELPHIA — PHILADELPHIA, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: RESNICK, ADAM CAIN — CHILDREN'S HOSP OF PHILADELPHIA
- Study coordinator: RESNICK, ADAM CAIN
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.