Creating a care decision-making program for African American families dealing with dementia
Designing a Culturally Tailored Formal Care Decision-Making Intervention for African American Dementia Dyads and Families
['FUNDING_OTHER'] · EMORY UNIVERSITY · NIH-10897947
This study is creating a special program to help African American families, especially adult daughters caring for parents with Alzheimer's, make better decisions about care, so they can feel more supported and improve their loved ones' quality of life.
Quick facts
| Phase | ['FUNDING_OTHER'] |
|---|---|
| Study type | Nih_funding |
| Sex | All |
| Sponsor | EMORY UNIVERSITY (nih funded) |
| Locations | 1 site (ATLANTA, UNITED STATES) |
| Trial ID | NIH-10897947 on ClinicalTrials.gov |
What this research studies
This research focuses on developing a culturally tailored intervention to assist African American families, particularly adult daughters caring for parents with Alzheimer's disease and related dementias (ADRD), in making formal care decisions. The project aims to address the unique challenges and health disparities faced by these families, who often lack structured support in navigating care options. By engaging with caregivers and understanding their needs, the research seeks to create a program that enhances family involvement and improves the quality of life for both caregivers and patients.
Who could benefit from this research
Good fit: Ideal candidates for this research are African American adults diagnosed with Alzheimer's disease or related dementias and their adult daughters who are involved in their care.
Not a fit: Patients who are not African American or those who do not have family caregivers involved in their care may not benefit from this research.
Why it matters
Potential benefit: If successful, this research could provide African American families with better tools and support for making informed care decisions, ultimately improving the quality of life for both caregivers and patients.
How similar studies have performed: Previous research has shown that culturally tailored interventions can improve care decision-making and outcomes for minority populations, indicating a promising approach for this study.
Where this research is happening
ATLANTA, UNITED STATES
- EMORY UNIVERSITY — ATLANTA, UNITED STATES (ACTIVE)
Researchers
- Principal investigator: JOHNSON, KALISHA BONDS — EMORY UNIVERSITY
- Study coordinator: JOHNSON, KALISHA BONDS
About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page below.