Creating a care decision-making program for African American families dealing with dementia
Official title: Designing a Culturally Tailored Formal Care Decision-Making Intervention for African American Dementia Dyads and Families
Funded at Emory University · NIH-10897947 · Data updated 2026-11-12
This study is creating a special program to help African American families, especially adult daughters caring for parents with Alzheimer's, make better decisions about care, so they can feel more supported and improve their loved ones' quality of life.
Quick facts
| Grant type | NIH-funded research |
|---|---|
| Study type | NIH-funded research |
| Funding institution | Emory University NIH-funded |
| Lab location | 1 site (Atlanta, United States) |
| Project start | September 30, 2021 |
| Project end | August 31, 2026 |
| Funding year | 2024 |
| Award (this year) | $146,912 |
| NIH project number | 5K23AG073516-04 |
| Project ID | NIH-10897947 on NIH RePORTER |
Who could benefit from this research
✓Could help
Ideal candidates for this research are African American adults diagnosed with Alzheimer's disease or related dementias and their adult daughters who are involved in their care.
✕Less likely to help
Patients who are not African American or those who do not have family caregivers involved in their care may not benefit from this research.
What this research studies
This research focuses on developing a culturally tailored intervention to assist African American families, particularly adult daughters caring for parents with Alzheimer's disease and related dementias (ADRD), in making formal care decisions. The project aims to address the unique challenges and health disparities faced by these families, who often lack structured support in navigating care options. By engaging with caregivers and understanding their needs, the research seeks to create a program that enhances family involvement and improves the quality of life for both caregivers and patients.
Why it matters
Potential benefit: If successful, this research could provide African American families with better tools and support for making informed care decisions, ultimately improving the quality of life for both caregivers and patients.
How similar studies have gone: Previous research has shown that culturally tailored interventions can improve care decision-making and outcomes for minority populations, indicating a promising approach for this study.
Where this research is happening
-
Emory University
Atlanta, United States Active
Researchers
- Principal investigator: Johnson, Kalisha Bonds — Emory University
- Study coordinator: Johnson, Kalisha Bonds
Related research
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About this research
- This is an active NIH-funded research project — typically early-stage science, not a clinical trial accepting patient enrollment.
- Some NIH-funded labs run parallel clinical studies or seek volunteers for related work. To check, contact the principal investigator or institution listed above.
- For full project details, budget, and progress reports, visit the official NIH RePORTER page.